The Patient Effect

In 2019 our Young Adult Panel was featured in a documentary called 'The Patient Effect'. The documentary highlights how our Young Adult Panel have shaped and influenced our research. Watch the trailer above and read on for the Press Release from Galway Film Centre....

Galway Film Centre is delighted to announce that the documentary; The Patient Effect has been selected as the Science on Screen commission for 2019. The documentary will have its world premiere screening at Pálás Cinema in Galway on Saturday, 16 November at 6pm. The documentary tells the story of public and patient involvement in research – how tapping into the lived experience of patients, their families and carers, has the potential to hugely enhance the quality and relevance of health and medical research.

Directed by Mia Mullarkey, this Irish documentary follows three personal stories, which reflect the power of including public and patient voices in planning and conducting research. Paul Ryan, father to Sophia who was born premature at 25 weeks, is contributing to a major research programme, exploring the most effective methods to monitor and manage babies with neonatal brain injury. Cameron Keighron (NUI Galway Student’s Union VP and Education Officer) lives with Type 1 diabetes and has been heavily involved in developing a new way of delivering healthcare to young people with diabetes. Margaret Devaney and the Swinford Arthritis Walking Group in Co. Mayo, provide a first-hand insight of the impact of chronic pain on their day-to-day life with medical device developers at NUI Galway, inspiring the developers in their research endeavours.

Professor Andrew Murphy from NUI Galway and Director of the HRB Primary Care Clinical Trials Network Ireland, said: “In health research, it is crucial that the public and patient voice is heard, helping to ensure that publically-funded research addresses issues that matter to patients. We hope this documentary will inform people about the importance of public and patient involvement in research and inspire both the public and researchers to get involved.” Produced by Alice McDowell of Ishka Films, the chosen documentary overcame stiff competition from production companies based all over Ireland. Speaking about the documentary, McDowell said “Patient and public voices have the power to transform the way we approach scientific and medical research in Ireland and worldwide. We’ve certainly witnessed this phenomenon during the past couple of months of filming and are excited to share three moving and inspiring stories in our soon-to-be-released documentary.”

Science on Screen is a collaborative initiative of CÚRAM and Galway Film Centre, partnering this year with the HRB Primary Care Clinical Trials Network Ireland and PPI Ignite @ NUI Galway. The scheme has been running since 2016 and has seen the production of four documentaries on topics ranging from Parkinson’s Disease (Feats of Modest Valour) to Tendon Injury (Mending Legends), to Diabetes (Bittersweet) and Stroke (A Tiny Spark). These films have been screened at prestigious film festivals around the world, had eight national broadcasts on RTÉ and TG4 and reached an audience of one million.